Research Article: Lived experience codesign of self-harm interventions: a scoping review
Abstract:
Objectives This study aims to map existing literature describing how people with lived experience of self-harm have engaged in codesigning self-harm interventions, understand barriers and facilitators to this engagement, and how the meaningfulness of codesign has been evaluated. Design Scoping review by Joanna Briggs Institute methodology. A protocol was published online ( http://dx.doi.org/10.17605/OSF.IO/P52UD ). Data sources PubMed, Embase, PsycINFO, Web of Science, Cochrane Library, PROSPERO, ClinicalTrials.gov and relevant websites were searched on 24 December 2022 (repeated 4 November 2023). Eligibility criteria We included studies where individuals with lived experience of self-harm (first-hand or caregiver) have codesigned self-harm interventions. Data extraction and synthesis Results were screened at title and abstract level, then full-text level by two researchers independently. Prespecified data were extracted, charted and sorted into themes. Results We included 22 codesigned interventions across mobile health, educational settings, prisons and emergency departments. Involvement varied from designing content to multistage involvement in planning, delivery and dissemination. Included papers described the contribution of 159 female, 39 male and 21 transgender or gender diverse codesigners. Few studies included contributors from a minoritised ethnic or LGBTQIA+ group. Six studies evaluated how meaningfully people with lived experience were engaged in codesign: by documenting the impact of contributions on intervention design or through postdesign reflections. Barriers included difficulties recruiting inclusively, making time for meaningful engagement in stretched services and safeguarding concerns for codesigners. Explicit processes for ensuring safety and well-being, flexible schedules, and adequate funding facilitated codesign. Conclusions To realise the potential of codesign to improve self-harm interventions, people with lived experience must be representative of those who use services. This requires processes that reassure potential contributors and referrers that codesigners will be safeguarded, remunerated, and their contributions used and valued.
Introduction:
As health services shift from paternalistic to person-centred care, there is an increasing focus on engaging patients and caregivers with lived experience in designing services. 1 Codesigned services are more efficient and relevant for end-users, foster positive emotions and increase service-user knowledge. 2 Gold standard codesign is both active and embedded, where those with lived experience are equal partners with a meaningful role incorporating creativity, problem-solving and decision-making. 3 Coproduction…
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