Research Article: Overview of Patients with Hemophilia in China: Demographics, Diseases, Treatment, and Health Status
Abstract:
Hemophilia is a rare disease, which is X chromosome-linked bleeding disorder with missing or defective clotting factor. It causes spontaneous bleeding, pain, target joints or arthropathy, limitation of mobility or even disability, and even life-threatening intracranial hemorrhages. To minimize the adverse effects of hemophilia on patients’ physical well-being and quality of life, it is beneficial to provide lifelong care and ensure regular infusion of clotting factors. To further improve patient care, real-world data on demographics, diseases, treatment, health status, and so on are required to provide information for comprehensive understanding.
Introduction:
Hemophilia is a rare disease, which is X chromosome-linked bleeding disorder with missing or defective clotting factor. It causes spontaneous bleeding, pain, target joints or arthropathy, limitation of mobility or even disability, and even life-threatening intracranial hemorrhages. To minimize the adverse effects of hemophilia on patients’ physical well-being and quality of life, it is beneficial to provide lifelong care and ensure regular infusion of clotting factors. To further improve patient care, real-world…
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